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Insights from Parents
This small list of web sites developed by parents comprises a treasury of information, inspiration and hope.Apraxia-Kids
"Apraxia-Kids started as a listserv for parents who have children with apraxia of speech. Such a forum was obviously deeply needed, for the list quickly grew to a vital and busy exchange between parents all over the globe as well as therapists and other professionals who have joined us. Probably one of the most frequent posts on the listserv which we have seen goes like this: "I have learned more about my child's speech problems and apraxia of speech in the last week than I learned in the past several years." Clearly there is power in parents sharing their experience and knowledge with one another..."Children's Disabilities Information
This informative web site provides support for parents with children who have special needs.Ed Chapman
Acronyms, developmental milestones, links, information and opinions.Hands Can Talk
Inspired by their daughter Elysha, Aileen Ryan and her husband John have developed this innovative Australian site about signing. Aileen writes, "Sign language has been fantastic for my daughter, Elysha [who has Down Syndrome], as a bridging language. Spoken language is her first language but due to her hearing loss and problems with being understood, sign language has been a life saver."Hearing Resources
"I think the hardest part for us as parents was the lack of information that was given to us when we were told our son could not hear. There are so many things to consider about children with hearing impairments. Things you don't even think about. The main issue being, how do you communicate? There are many ways of communicating with a child with a hearing impairment... " Kyle's mother, Sherry Zeilstra, developed this helpful site.Internet Resources for Special Children
Inspired by Rob, his son who has multiple disabilities, Julio Ciamarra puts untold effort into his IRSC site. It is a non-profit web site that provides parents, educators, medical professionals, and caregivers with information regarding children with (as Julio puts it) disABILITIES.
OAFCCD
The Ontario Association for Families of Children with Communication Disorders was founded by a group parents and professionals to provide a provincial voice for children with speech and language disorders. Their accessible and informative web site includes parent resources, links, and factsheets. [OAFCCD MAIN INDEX]
Rainbows: Trisomy 18 & 13
The main focus of Karen Schuler's web page Rainbows from Down Under is Trisomy 18, Trisomy 13 and other related Chromosomal Disorders. The reason for her interest in these disorders began in 1994 when she gave birth to the most beautiful little boy, Alexander. Alexander was born with mosaic Trisomy 18.Semantic-Pragmatic Disorder
Speech Teach
Denise Vignola has compiled a useful collection of links and articles from the perspective of being not only a parent of a 6 year old with CAPD, but also as an adult with the same issues.
Dave and Vanessa Jones write, "This site is intended to be a focal point for sharing ideas and experiences for the benefit of kids with speech problems". Look at site news and resources.
// Clever clipart and useful downloads!
Wide Smiles
"One child in 700 is born with a cleft. It is the fourth most common birth defect, and the first most common facial birth defect. And yet so many parents feel so alone. WIDE SMILES was formed to ensure that parents of cleft- affected children do not have to feel alone. We offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting..."Page updated 13 May 2009
http://www.speech-language-therapy.com/ParentInsights
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