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Service delivery
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consumer advocacy

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Webwords
14
ACQ Internet Column
June
2003
Caroline Bowen |

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Bad waiters
Speech-Language Pathology needs bad waiters. We don't need
nice, patient,
understanding waiters - we need
consumers who are itching to address communication difficulties, in
themselves, or in family members, and who will not put up with waiting
lists, stop-gap minimalist services, untested "consultative"
models, incomprehensible home programs they have not been given the
skills to implement, group therapy where individual services would be
more appropriate, or patchy, sketchy intervention delivered by
under-resourced clinicians who never have enough time for themselves on
the road to burnout.
Imagine a well-organised
band of vocal, articulate consumers, or would-be consumers, rallying
with banners aloft and facts at their fingertips outside the-place-where-the-waiting-list-is-kept protesting their right to
timely, appropriate, efficient and effective assessment and
intervention.
What's that they're chanting?
'What do we want?'
'Service!'
'When do we want it?'
'NOW!'
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Good-bye nice
Picture the bad waiters in cahoots with therapists behaving
boldly. The
bad
ones who bravely go out on a limb, ethics to the fore,
accurate information, including TOMS, NOMS
and the latest clinical
research
at the ready, to advocate for
clients' needs - even when it might mean that the Wild Things further up the hierarchy
will smile their terrible smiles, and gnash their
terrible teeth, and write their terrible memos - to stop the badness
RIGHT NOW!
Consider how powerful a group of well
disciplined, fully informed, energetic consumer advocates, liaising closely with members
of the profession, could be in lobbying government and funding bodies
to provide essential and adequate services for all communicatively
impaired people in this, or any country.
Yes! I've imagined it all and thought about
it a lot, and I've gone right
off "nice".
From now on I'm on the side of bad! Really.
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Internet activists
Pure fantasy? Well, not quite.
Protesters, advocates and lobbyists may not be physically beating
down agency doors, badgering politicians, or chaining themselves to
giant waiting lists to make their point: but there is a lot of
activity going on, and nowhere is it more apparent than on the
Internet.
Take for example The Ontario Association
for Families of Children with Communication Disorders whose site
includes a no holds barred document
detailing the 'OAFCCD Service
Delivery Model Analysis of School Speech - Language Pathology Ratios
And Costs'. Arguing the case for essential improvements to services,
this lobby group of parents and professionals does not mince words:
"Of the approximately 2 million
students in Ontario Schools, roughly 50,000 students are serviced
by school speech-language pathologists (School Health Support,
1993). This represents about 2˝% of the estimated 10% of
children who need speech and language service. (Beitchman, et al.,
1986; Casby, 1989). Clearly the speech and language needs of our
school age children are not being met.
Given that the schools presently employ
roughly 300 speech-language pathologists to provide speech and
language service, the current ratio is approximately 1:6666 school
children. This overall figure, however, provides a misleading
picture of the current situation because of the disparity in
service from board to board, with some boards providing no service
from speech-language pathologists ...the range of ratios is from 1:2250 to 1:10,000 for boards
where services are available."
The OAFCCD people do not stop at agitating for better
services. In common with many comparable groups, their real forté is providing
information that empowers and helps consumers make the most of what
is currently available via downloadable resources, newsletters, a
message board, online chat, and related links.
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Professional
voices
Our professional associations are
taking up the cudgels too, on behalf of clients. In a document on
the costs of a communication disability, Speech Pathology Australia, and, you
know, Speech Pathology Australia is
its members, refers to itself as
"the official body representing speech pathologists, the
professionals who work with and advocate for people who have a
communication disability." The document goes on to refer to:
"long waiting lists and understaffing in
government services".
In the US, Take
Action often assumes centre stage at the ASHA
professional portal. It includes an online form that enables members
to write to their state and federal legislators directly from the
site.
The Canadian association, CASLPA
(have you seen their nice new site!) is replete with articles
around the "...demands [that]
are being placed on speech-language pathology services, as evidenced
by lengthy waiting lists and large caseload numbers."
Montreal clinician-manager Robin Springer writes:
"We have become obsessed with
waiting lists in speech-language pathology. Perhaps it is the
by-product of an era of increased public attention to the state of
our health care and educational systems that is giving us our
notoriety-finally. Waiting lists for many of us have become a
focus of what we think about, and appear to stand in direct
competition with the combined intellectual passions and clinical
dedications that to me are the hallmarks of a wonderful
profession."
The Royal College of Speech and Language
Therapists has a highly political news and press release section, quoting directly from the national media, for
example:
"On 22 August 2001, The Guardian
published an article in its Society supplement on speech
and language therapy, under the title "Lost for words".
The article outlines the long wait for speech and language therapy
experienced by some children with communication difficulties and
the limited nature of therapy when available. ...The article
points out that much of the problem is due to the profession's
recruitment and retention problems.
...The Royal College of Speech and Language Therapists recognises
that the shortage of therapists causes worrying problems for
families. Together with the Department of Health and MSF (the
union to which many SLTs belong), we are working to improve the
recruitment and retention of therapists."
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Let's roll!
Right on, bad waiters! Good for you, SPA, ASHA,
RCSLT and CASLPA! Individual therapists behaving boldly: go for it!
Let's usher in a mood of zero tolerance for service delivery that is
shackled by low staff retention rates and long waiting lists. Come on!
What are we waiting for?
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References
Beitchman, J., Nair, R., Clegg, M.
Ferguson, B. & Patel, P. (1986). Prevalence of speech and language
disorders in 5-year-old kindergarten children in the Ottawa-Carlton
region. Journal of Speech and Hearing Disorders, 51, 98-110.
Casby, M.W. (1989). National
data concerning communication disorders and special education. Language,
Speech and Hearing in the Schools, 20, 22-30.
School Health Support
Interministerial Committee (1993). Speech and Language Services in
Ontario Schools. Paper presented at the Education Symposium,
December, Mississauga, Ontario.
Addendum: June 8
2003
Inspiring women
Journey to Judith Felson Duchan's site
to read the wonderful closing address, written and delivered by Ruth
Porteous, at the May 2003 Speech Pathology Australia Conference in Hobart,
Tasmania. In keeping with the conference
theme, Ruth's talk was called 'Nature,
nurture, knowledge and experience in the life of our profession'.
While you're there, enjoy this.
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COPYRIGHT
©
Caroline Bowen ALL RIGHTS RESERVED
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Page updated
February 05, 2010
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